Tag Archive | Chronic Fatigue

Dire Circumstances, BUT God…

Well, I had a few really good days before my body crashed again. (fatigue/dizziness) I was really frustrated, yesterday, that it didn’t make any sense. So, I’m going to just say that I was sick. When people normally get sick, it’s random, unpredictable, and inconvenient. I don’t understand the reasons, but until then, here is a list of the things I’ve seen God be there for me this last week:

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1) God brought a friend back into my life that had hurt and disrespected me a year ago. I have kept boundaries in place, but He has been healing and leading her.

2) My oldest accomplished double his schoolwork last week to spend time with his grandparents fixing up their home. What an amazing teaching opportunity, and relationship builder!

3) The kids helped me research new recipes. My oldest even made one to take to our family reunion last Saturday! Because of this, there were no complaints about how “Mom’s killing us!” or “We’re eating like birds!”

4) We were able to spend quality time with some of our best friends in this weekend before they move later this week. I know God brought them into our lives blessing us in so many ways, and that He will bless us with more friends. It was great to spend time and hope to make plans together in the future, too.

5) I loved going to my home church, singing with incredibly talented people who I’ve missed, hugging many that I love, not needing Google maps to find my way, and feeling so loved that I could face the world again.

6) I’ve been able to work through some issues while my parents encouraged me.

7) We came home safely and were able to get the house back in order, so that I only had laundry and dishes left.

8) When I was wondering if I needed to ask for help, I realized that the house was fine, the kids know how to feed themselves because I haven’t made dinner in months, and I just needed rest since I couldn’t do much else.

9) The van’s axle broke with me driving across town. I was safe. Ford fixed it for free because of an old recall.

10) Our upstairs bathroom is getting remodeled! It’s been leaking since we moved in, so we tried not to bathe much… But we have a shower upstairs, now, and the bathroom could be finished by the end of the week.

11) The kids found out about a VBS down the street and were excited to go. Without a vehicle, I wasn’t letting them go in the rain. They prayed for it to stop and it did when it was time to go.

12) My neighbor took my kids last night to VBS since I couldn’t walk them.

13) I am grateful for those who show kindness and compassion. A friend who asked if she could help without embarrassing me in front of others, listened and tried to understand, and made sure I safely returned home.

14) Free valet parking at the hospital. He never questioned why I might need help even with his eyes. (I’ve had people do so in the past with Walmart carts.) Never made a comment about how good I look to not feel well. He even helped me with my door and seat belt. Kindness is God’s love. 

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I could go on with every detail. But I just wanted to say that regardless of how dire circumstances seem, God is always there. He’s been working things out for my good from the beginning. He knows and loves me personally. Circumstances change, but God never does. He is the same yesterday, today, and forever. This is why I trust and love Him.

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Climbing out of the Canyon

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Last year, I feel like I fell into this deep canyon. Many people who had the same thing that I have called it “chronic” with “no cure” adding to feelings of hopelessness. I was experiencing depression so bad my chest ached, pain in all of my joints (Chronic Pain,) nerve pain up my back (Fibromyalgia,) emotional and social pain, severe menstrual pain that made me want to throw up (Adenomyosis,) severe migraines, loss of energy (Chronic Fatigue,) fogginess, insomnia, becoming sick on most foods (Mast Cell), and dizziness to the point of passing out (POTS.) I feared for not only my quality of life, but my children’s. I would not be able to homeschool them, I would miss out on their lives, I would need a caregiver, and they would end up in the same predicament as me in the long run. If I had listened to the voices of hopelessness, I would not be where I am today and it would have affected everyone around me.

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But I prayed. I did not moan with the question, “Why me?” I wanted to know what He wanted me to learn. I sought answers. I did not give up. I listened as one man who had experienced severe allergies to everything (Mast Cell) inspired others on a support group with being able to run after one year of hard work. I have fought my way up this canyon wall learning to use many tools along the way with God, the Master Physician, leading me. It’s still tough. Sometimes, I forget to use the tools and want to quit. But I’m still fighting. Today, I am stable with very little medication (the need for it going down monthly), supplements and nutrition, herbs and essential oils, exercise, emotional healing, and I am not afraid to learn more. I am back to cleaning my house, being creative, feeling clear, excited about life, still homeschooling and teaching my kids what I have learned so they never have to experience what I went through, and rarely ever getting dizzy. (When I do, I have my emergency bag with me.) I feel I am halfway back to feeling healthy and still climbing up on this journey.

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Can I cure EDS? No. But I can live out a normal life bringing out the best in my genes and teach my kids to do the same. I am no longer lying down unable to move, no longer afraid, and definitely not hopeless. I want to bring hope to others with the things that I have learned… and last but not least, be there for my own family. NEVER Give up!!! There ARE answers. There IS Hope. You are NOT alone! May God Bless You on your journey as you Seek Him for the Answers He can lead you to.





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This Amazing Journey

About 6 months ago, I experienced Chronic Fatigue and Chronic Pain… and it has been an AMAZING JOURNEY!!!

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I began, like anyone would, experiencing grief for my health. I was very emotional, I felt defeated and frustrated, and I felt a great loss. This is necessary, however, I am not one to stay hopeless. I know that there are answers out there and I know that as we seek God for these answers, He WILL provide.

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I began with a Fight

A Fight against my connective tissue disorder: Ehlers-Danlos Syndrome.

A Fight against taking care of everyone else but me.

A Fight to take care of myself.

A Fight to want to heal and provide answers for myself and my children who also have EDS.

A Fight to be heard; I did not want to feel alone and keep the suffering to myself. A Fight to ask for help.

A Fight to Keep Positive knowing that I didn’t have to stay this way no matter what others around me kept saying.

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My sister gave me a Christmas gift of a beautiful bracelet that brought me to tears. I felt understood, encouraged, and supported in that moment. It was a reminder to keep pressing on when I wore it.

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The more that I convinced myself that it was okay to be honest and to talk about it to others, the more I found support and love. I did not expect that. It was hard for me, being a private person, to say that anything was wrong with me or that I needed help. I had felt so much misunderstanding from health professionals, having to argue their misinformation, that I expected more misunderstandings. That happened in the beginning as I got the “What?” looks from people and the looks from others thinking I wanted a pity party. But there were so many more that became my supports even if only in their kind encouragement and prayers.

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As I began to find answers, some all at once and others slowly, I began to incorporate them. My own family was questioning me, but I just knew that when God lead me to an answer, I had to go for it. (Honestly, if they’d known how long I’d prayed about it and researched it before knowing that it was right for me, they probably would have understood a lot easier, but change is hard and scary nonetheless) I began to accept this beautiful person that God created me to be.

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Last month, walking into one of my specialist’s offices, he was shocked at how different I was. He asked me if he could sign the book that I was going to write. I laughed it off, but he wanted to know all that I had been doing to heal. So, I listed the things off for him. He was amazed that I had sought out many different avenues and he encouraged me to keep going. How neat to hear from a doctor!

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My husband, being a counselor, talks about the 4 different areas of our life that we need to be healthy. He likes to compare them to the legs of a chair. If one of these 4 legs is damaged, it affects all of the other legs, as well as, the ability to stand on it’s own.

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I am not done searching and applying answers that I have been given, as well as, those I have not yet received. I will continue to seek them out as long as I breathe. I am an example to these children of mine who will have similar challenges because of EDS and will also have many other challenges that I may have never experienced. But I am grateful to be on this AMAZING JOURNEY! I am so amazed at how God never leaves us alone and how He always keeps His promises.

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So, to others who are currently in the grieving process, Do not be afraid to fight, search, pray, accept, and love yourself enough to change. The answers ARE out there and you CAN make a difference!

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