Tag Archive | POTS

It’s not fair!

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“It’s not fair!” My 5yr old son was throwing a tantrum. I asked him to do his chores, he refused, and now was missing out on the T.V. show that his siblings were watching. “It’s not fair! It’s not fair!” He continued. I can completely relate to this feeling.

 

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When I was 13yrs old, I gave up chocolate because I was addicted to it. A speaker at church talked about addictions, and I took to heart that scripture, “if your hand offends you, cut it off.” (Mark 9:43) In quitting chocolate, I noticed that my asthma attacks went way down. It was difficult. I proved that I had self-control and that it did not control me.

 

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When I was 16yrs, I noticed that my stomach felt like it had knives in it when I drank milk. I switched to rice milk, though, the colonoscopy results said “the beginnings of stomach ulcers.”

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When I was 18yrs, I began passing out and having severe migraines. I found a severe intolerance to Red Dye #40, and a corn allergy were the cause. Often these ingredients were together in products which made it easier to avoid both.

 

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And now, in my mid-thirties, my body won’t tolerate sugar. A little over a year ago, I began experiencing Chronic Pain and Fatigue, and other Dysautonomia/POTS symptoms. My body is very low on salts and doesn’t hold them anymore, so sugar sends me right back where I was over a year ago. It’s just not fair.

 

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This Christmas, they were passing around treats at church, and normally, I can refrain because they are pre-packaged. (Either chocolate, corn syrup, red dye or all 3.) But there were tiny muffin size home-made pecan treats… so I ate a few. Almost immediately afterwards, I felt light-headed. I went to the kitchen and took out my emergency Nuun tablets. It wasn’t enough this time. It was just not fair!

 

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Now, I have been learning to love myself this last year, but right there, I turned immediately to frustration at myself. But, if I truly looked at this situation with love, I would see how far I’ve come and be a little more patient in my learning… just like my 5yr old child in the beginning of this post.

 

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A year ago, I didn’t know why I was so exhausted. I not only have those answers of why, but how to heal. This is my first Christmas knowing how sugar hurts my body. It’s hard to cut out foods or change anything regardless of what that change is. And frankly, life just isn’t fair. It’s okay to grieve through it. We all have our own struggles. I’m realizing that the expectations I place on myself to “Get it right already!” are just as damaging as the sugar itself.

 

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I have learned to avoid harmful foods before. I have made healthy changes before. I can be patient with myself while I learn to change and be healthy in this new way. I have a wonderful support system that is ready to help me in the way I ask. I can use my voice and ask for help. I can change and learn at a pace that I’m able to handle. And… I can enjoy the accomplishments I’ve made this far.

 

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For more articles like this one:

Faith and Encouragement

Treatments for EDS

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Climbing out of the Canyon

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Last year, I feel like I fell into this deep canyon. Many people who had the same thing that I have called it “chronic” with “no cure” adding to feelings of hopelessness. I was experiencing depression so bad my chest ached, pain in all of my joints (Chronic Pain,) nerve pain up my back (Fibromyalgia,) emotional and social pain, severe menstrual pain that made me want to throw up (Adenomyosis,) severe migraines, loss of energy (Chronic Fatigue,) fogginess, insomnia, becoming sick on most foods (Mast Cell), and dizziness to the point of passing out (POTS.) I feared for not only my quality of life, but my children’s. I would not be able to homeschool them, I would miss out on their lives, I would need a caregiver, and they would end up in the same predicament as me in the long run. If I had listened to the voices of hopelessness, I would not be where I am today and it would have affected everyone around me.

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But I prayed. I did not moan with the question, “Why me?” I wanted to know what He wanted me to learn. I sought answers. I did not give up. I listened as one man who had experienced severe allergies to everything (Mast Cell) inspired others on a support group with being able to run after one year of hard work. I have fought my way up this canyon wall learning to use many tools along the way with God, the Master Physician, leading me. It’s still tough. Sometimes, I forget to use the tools and want to quit. But I’m still fighting. Today, I am stable with very little medication (the need for it going down monthly), supplements and nutrition, herbs and essential oils, exercise, emotional healing, and I am not afraid to learn more. I am back to cleaning my house, being creative, feeling clear, excited about life, still homeschooling and teaching my kids what I have learned so they never have to experience what I went through, and rarely ever getting dizzy. (When I do, I have my emergency bag with me.) I feel I am halfway back to feeling healthy and still climbing up on this journey.

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Can I cure EDS? No. But I can live out a normal life bringing out the best in my genes and teach my kids to do the same. I am no longer lying down unable to move, no longer afraid, and definitely not hopeless. I want to bring hope to others with the things that I have learned… and last but not least, be there for my own family. NEVER Give up!!! There ARE answers. There IS Hope. You are NOT alone! May God Bless You on your journey as you Seek Him for the Answers He can lead you to.





Other Related Articles:

EDS Associated Issues

Faith and Encouragement

Magnesium Deficiency

Natural Remedies

Nutrition

Relationships

Treatments for EDS



Magnesium Deficiency

I have been putting off writing this post for a long time. There is so much that a Magnesium deficiency covers, not to mention finding the right kind of Magnesium! It has been exhausting process for me, but WELL worth it! I would like to pass on this information to you.

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So, let me start there. You many be Magnesium deficient if you have these SYMPTOMS:

  • Constipation
  • High blood pressure (Hypertension)
  • Anxiety
  • Depression
  • Insomnia
  • Behavioral disturbances
  • Lethargy
  • Impaired memory/thinking
  • Seizures
  • Fatigue
  • Sleep disturbances
  • Pain
  • Muscle cramps
  • Chronic back pain
  • Headaches
  • Migraines
  • Muscular pain
  • Tendonitis
  • Anger
  • Aggression
  • ADHD
  • Brain fog
  • Tension
  • Anxiety disorders such as OCD

Then, let’s add on mutations. A connective tissue disorder such as Ehlers-Danlos Syndrome causes problems in holding Magnesium (and other salts) in your body. Dr. Heidi Collins talks about how many problems in EDS that are aided by adding Magnesium in one’s diet. Her paper is summarized by Dr. Diana Driscoll here. (both Dr. Driscoll and Dr. Collins have EDS)

Now, if you’ve established that you may have a Magnesium deficiency, try adding foods with Magnesium into your diet. Also cut out sugars, processed foods, starches, and gluten in your diet that are immediately decreasing your Magnesium (and other salt) levels. Personally, I do not even like salt and many foods that have Magnesium in them, so I poured over the food list that includes Magnesium and first chose the foods that I didn’t hate. Now, I am trying foods that I never particularly cared for with different recipes to find a way that I may like it instead of completely dismissing something that is good for me.

First, I knew I liked Spinach. I began adding fresh spinach to the salad that my husband began making for me to get well. Then, I began doing the same with avocados. Next, I began eating tuna salad (albacore without mercury) with veggie chips instead of on bread. Now, I’ve completely cut out the chips. I tried an internet recipe passed around on Facebook on garbanzo beans.  I’m trying spinach smoothies. (and other green smoothies.) 6 months ago, I would have thought that green smoothies were crazy, however, I figure if I’m not feeling well with what I’m doing, try something new! (for any diet changes, I’ve found it easier for me to go slow and not to jump in, or I won’t stick to it.)

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Now, being extremely Magnesium deficient because of EDS and dealing with Chronic Pain and Fatigue and Insomnia beginning 2 1/2 years ago, I knew I had to do something drastic. I began searching for vitamin supplementation even before getting in to see Dr. Collins. Even after working with her on it, I have found these things to be true:

  1.  There are many types of Magnesium. The many different types work best for different issues and systems of the body.
  2.  Because every body is different, one Magnesium that works for me, may not work for you. Dr. Collins suggested that Chelated Magnesium was the best for those of us with EDS, however, my body did not absorb it… it simply did not improve my health and quickly left my body. There is only one that has worked for me to improve my health. I have found that the types that end in “ate” work best to absorb, and the “ide” endings just go right through (best for laxative affect.)
  3.  Magnesium Citrate is the fastest way to get it into your body. This is also the type that I’m able to give my children with EDS who cannot swallow pills.
  4.  You need other vitamins with your supplementation that help your body to absorb Magnesium: Calcium, B6 and Vitamin D3. This is easier to do with food intake rather than supplementation, but when you are extremely deficient, consider these vitamins, as well.
  5.  Calcium supplementation ratio should be Calcium 1.5-Magnesium 1 (Calcium 150-Magnesium 100 or Calcium 200-Magnesium 130.) For my child with IBS, we need a 2-1 ratio. For him, I add in chewable calcium to make up the difference when he takes his Magnesium drink.
  6. You can overdose on B6 causing neuropathy. My favorite supplement is vitamin B50 which has the FDA limit of B6, but also other B vitamins in it. I also take a B12 vitamin for energy that does not have a limit like B6 does.
  7.  Taking Magnesium in the morning is best. I had been trying to do 1500mg before bed and waking up not feeling so well still. Taking a bunch of salt before bed, before not eating for a large amount of time, can cause hypoglycemia. I do not have a problem with that, but lack of salts in my body acts the same way. I have always had to eat every couple of hours. I do not need to cause another problem. But having the right amount of Magnesium at the right times can stabilize insulin. The Magnesium that I currently take says to take 3 times a day, so I take it with food.
  8.  Taking Magnesium with Iron will cancel out both vitamins. I take Magnesium separate from my Vitamin C and multivitamin. (Dr. Collins suggests that a multivitamin is not necessary because the high vitamin ratio that is actually needed is so low in the multivitamin.)
  9.  Foods with Magnesium in them absorb best.
  10. Do not forget that salt and water work together. One is supposed to drink half their body weight in oz. of water. If you are taking a ton of salt with no water, you will dehydrate. If you are taking in a ton of water, but no salt, you will also dehydrate. (Sports drinks have too much sugar in them)
  11. Exercise, even just taking a walk, is extremely helpful in maintaining health.

These things have been helping my family and I to heal from Chronic Pain/Fatigue, Insomnia, Hyperactivity, Allergies, Joints that easily pop out of place, and Easy bruising/bleeding. When your body is well in other areas, you do not get sick as easy. Another thing I like to do to help to not feel dizzy (POTS) is to add Epsom salt to the bath water or plug the drain to do so while showering. Also Magnesium spray  or Magnesium cream onto my areas of muscle pain. It absorbs quickly into the part of my body that needs it. Carrying around Magnesium tablets or powder with me have also been a life-saver when I am out and have an episode of my blood-pressure dropping. I hope this has helped or will help you in your journey. Here are a couple of other videos that have inspired me.

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Dr. Terry Wahls talking about her journey with MS.