Tag Archive | Connective Tissue Disorder

Magnesium Rich Foods

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Today, I walked into church feeling exhausted, my voice sounded tired, my muscles were tired. I began shaking during Sunday School and went for my emergency bag holding my Nuun tablets. However, later, after church, I laid there exhausted wondering how I could help myself. I realized that this time… I could. Recently, I’ve been finally learning to make and eat healthy foods to save me from a Magnesium drop. So, I began to make things to help my Magnesium levels to rise back up.

 

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First, it has been important to me to know what causes these drops. This helps me to know how I might be prepared for these issues instead of frustrated as I’m learning.

 

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#1 Ehlers-Danlos Syndrome– Because of having this particular connective tissue disorder, my kids and I are naturally deficient in Magnesium.

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#2 Sugar– Processed Sugar, Processed Sugar substitutes, and other Grains and Starches (that turn into sugar in our bodies) not only lower the salts in our bodies (which is not good for #1,) but also allows the bad bacteria in our bodies to get out of control. This can cause a big range of problems including bad teeth, liver problems, insulin resistance, obesity, high cholesterol, and contributes to cancer.

Our culture has been rising in sugar consumption by less than 2% yearly showing on this graph from 1822-2005. “It’s a remarkably straight line, increasing steadily from 6.3 pounds per person per year in 1822 to a maximum of 107.7 lb/person/year in 1999.”

 

 

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#3 Leaky Gut– Too much wear and tear on the stomach lining causes holes which leak food directly into the blood causing many physical issues including, but not limited to, autoimmune issues, major food allergies, and malabsorption of vitamins and minerals.

 

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#4 Hormones– Naturally, the last two weeks of a woman’s menstrual cycle causes Magnesium levels to drop which can normally cause headaches, bloating, low blood sugar, dizziness, fluid retention and sugar cravings.

On a grander scale, low Magnesium can ultimately lead to dysmenorrhea (painful periods,) preeclampsia, infertility, premature births, hypoglycemia, anxiety, obesity and diabetes.

 

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Here are some Magnesium Rich Foods that we are currently enjoying; most of which friends and family have gladly shared their knowledge and time with me… 

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Roasted Garbanzo Beans (Chickpeas)

Originally, I had been frying them, but since burning a hole in the microwave above the stove, I decided to roast them. 450 degrees for 30 minutes.

1 can Garbanzo beans
1 Tbsp Olive Oil
1/2 Tbsp Paprika
1/2 Tbsp Cumin
1/8 tsp Cayenne Pepper
1/2 tsp salt

 

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This is one of the first things I began making. At first my kids stayed far away from it, but after I told them that it was mine… they began wanting it. I have to keep the banana out for one of my children, but it is an amazing source of Magnesium!

SAM_5395

 

Green Smoothie

1/3 Kale
1/3 Spinach
1/3 frozen Berries
1 Banana
1/2 Water (some use milk, but all use different kinds of milk in our household, so this is best for us. Almond Milk would be the highest source of Magnesium. Feel free to use ice if you don’t use frozen fruit.)

 

 

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Kale Chips

My son made these last week after a friend at church told me how to make them. We all love the taste, and they are super easy to make. I did notice that when I put them away in a ziplock bag or plastic container, that they would become soggy again. I then put them back in the oven. We left them out all night a couple of nights ago, and they were super crispy!

In a bowl, mix Kale leaves with a tiny bit of Olive Oil and salt.
Put them in the oven at 350 degrees for about 10 minutes.

 

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And just adding Avacado and Spinach to your Salad is a great boost of Magnesium!

 

 

 

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This has been a fun learning experience for my family and I as we are changing for the better. I will add more as we learn more. I hope this encourages you today!

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Other Related Articles:

Ehlers-Danlos Syndrome

Magnesium Deficiency

Treatments for EDS

 

 

This Amazing Journey

About 6 months ago, I experienced Chronic Fatigue and Chronic Pain… and it has been an AMAZING JOURNEY!!!

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I began, like anyone would, experiencing grief for my health. I was very emotional, I felt defeated and frustrated, and I felt a great loss. This is necessary, however, I am not one to stay hopeless. I know that there are answers out there and I know that as we seek God for these answers, He WILL provide.

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I began with a Fight

A Fight against my connective tissue disorder: Ehlers-Danlos Syndrome.

A Fight against taking care of everyone else but me.

A Fight to take care of myself.

A Fight to want to heal and provide answers for myself and my children who also have EDS.

A Fight to be heard; I did not want to feel alone and keep the suffering to myself. A Fight to ask for help.

A Fight to Keep Positive knowing that I didn’t have to stay this way no matter what others around me kept saying.

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My sister gave me a Christmas gift of a beautiful bracelet that brought me to tears. I felt understood, encouraged, and supported in that moment. It was a reminder to keep pressing on when I wore it.

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The more that I convinced myself that it was okay to be honest and to talk about it to others, the more I found support and love. I did not expect that. It was hard for me, being a private person, to say that anything was wrong with me or that I needed help. I had felt so much misunderstanding from health professionals, having to argue their misinformation, that I expected more misunderstandings. That happened in the beginning as I got the “What?” looks from people and the looks from others thinking I wanted a pity party. But there were so many more that became my supports even if only in their kind encouragement and prayers.

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As I began to find answers, some all at once and others slowly, I began to incorporate them. My own family was questioning me, but I just knew that when God lead me to an answer, I had to go for it. (Honestly, if they’d known how long I’d prayed about it and researched it before knowing that it was right for me, they probably would have understood a lot easier, but change is hard and scary nonetheless) I began to accept this beautiful person that God created me to be.

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Last month, walking into one of my specialist’s offices, he was shocked at how different I was. He asked me if he could sign the book that I was going to write. I laughed it off, but he wanted to know all that I had been doing to heal. So, I listed the things off for him. He was amazed that I had sought out many different avenues and he encouraged me to keep going. How neat to hear from a doctor!

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My husband, being a counselor, talks about the 4 different areas of our life that we need to be healthy. He likes to compare them to the legs of a chair. If one of these 4 legs is damaged, it affects all of the other legs, as well as, the ability to stand on it’s own.

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I am not done searching and applying answers that I have been given, as well as, those I have not yet received. I will continue to seek them out as long as I breathe. I am an example to these children of mine who will have similar challenges because of EDS and will also have many other challenges that I may have never experienced. But I am grateful to be on this AMAZING JOURNEY! I am so amazed at how God never leaves us alone and how He always keeps His promises.

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So, to others who are currently in the grieving process, Do not be afraid to fight, search, pray, accept, and love yourself enough to change. The answers ARE out there and you CAN make a difference!

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More Articles like this:

Faith and Encouragement



Vitamin C Deficiency

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Everyone knows that if you are sick, it’s a good idea to take Vitamin C. For those with Ehlers-Danlos Syndrome, bruising and bleeding (nose-bleeds/hematomas) is an everyday event, as well. Vitamin C plays a role in collagen, carnitine, hormone, and amino acid formation. It is essential for wound healing and facilitates recovery from burns. Vitamin C is also an antioxidant, supports immune function, and facilitates the absorption of iron.

High-dose  ascorbic acid (vitamin C) therapy has been tried and, in theory, has a potential effect. Clinical studies suggest that wound healing, even in patients not deficient in vitamin C, can improve with supplementation above the recommended daily allowance. In patients with kyphoscoliosis type EDS, bleeding time, wound healing, and muscle strength seem to improve after 1 year of daily high-dose vitamin C therapy; however, high-dose vitamin C therapy is not considered the standard of care and requires medical clearance for use.

Speaking from experience, Vitamin C is vital to not only healing of bruises, but prevention. When I was a child, my doctor put me on a 2,000 mg of vitamin C. My children, who have EDS, also are on that dosage. As an adult, I have been told to up it to 5,000 mg.  ( Please start at 500mg and work your way up to 5,000 mg since it does cause runny stools. ) I have noticed, though, that when my Magnesium drops, my Vitamin C levels are also low and I bruise easy again. (See Magnesium Deficiency) My favorite brand of Vitamin C is Ester C because it is easier on the Digestive System. Connective Tissue Disorders already have a hard time with the stomach tissue, so it’s a good idea to prevent problems.

This is not the same for ALL individuals, but specifically for EDSers.


Vitamin C Rich Foods

There are many foods that are rich in Vitamin C. Many of them have more Vitamin C in them than Oranges! Some of them include: Broccoli, Brussels Sprouts, Cauliflower, Chili Peppers, Green Bell Peppers, Kale, Kiwi, Mango, Papaya, Red Bell, Peppers, Pineapple, and Strawberries.


Vitamin C Absorption

While taking 5,000g of Vitamin C supplement at my doctor’s request, I noticed that my stomach hadn’t been absorbing it well. At first, I thought, “I must be taking too much, now. Maybe my body has adjusted.” But while walking across my floor, I bruised the bottoms of my feet and it was painful. I knew that I was not absorbing it well and that my body needed it. So, I began to research Vitamin C absorption. I also began taking Vitamin C in half doses twice a day. (2,500g in the morning, 2,500g for lunch) I have always heard that Vitamin C helps Iron to absorb better, but it doesn’t work well the other way around.

I was made aware of Flavanoids or Bioflavanoids; what used to be called Vitamin P aids in the absorption of Vitamin C. Flavanoids promote blood vessel health, including improve capillary strength, prevents accumulation of atherosclerotic plaque, has anti-inflammatory properties acting against histamines, may help protect against infection and blood vessel disease, may lower blood pressure by relaxing smooth muscle of cardiovascular system, may inhibit tumor growth, may have estrogen-like activity, may prevent hemorrhoids, miscarriages, capillary fragility, nosebleed, retinal bleeding in people with diabetes and hypertension, and may lower cholesterol levels.

While it is available in both liquid and tablet form, there are also many foods that include Flavanoids including: Almonds, Apricots, Apples, Bananas, Bell peppers, Bilberry, Blackcurrants, Blueberries, Broccoli, Buckwheat, Cabbage, Cantaloupe, Celery, Cherries, Chili peppers, Citrus fruits, Cranberries, Garbanzo beans, Ginkgo, Grapes, Grapefruit, Green Peppers, Green tea, Hawthorn, Lemons, Lettuce, Milk thistle, Onions, Oranges, Parsley, Peaches, Pears, Plums, Quinoa, Red wine, Raspberries, Romaine lettuce, Rose hips, Strawberries, Sweet potatoes, Tomatoes, Turnip greens, Watermelon, and Yarrow. It’s important to note that in the U.S. the largest single source of Flavonoids is Black and Green tea.

Most documented risks for flavonoid deficiency have already been discussed since they involve poor dietary intake. Overconsumption of processed foods, overcooking of foods, and underconsumption of fresh vegetables and fruits are the primary circumstances related to deficiency. Risk of dietary deficiency for flavonoids is basically synonymous with low dietary intake of whole, natural foods, and in particular, low intake of vegetables and fruits. By far your best way to ensure ample flavonoid intake is to maximize your intake of whole natural foods, including fresh, brightly colored vegetables and fruits whose flavonoid pigments provide them with their vibrant colors. This approach sounds simple, and it is a great method for increasing your flavonoid intake. Most supplements with Vitamin C and Bioflavanoids together include them with a 50:50 ratio.

I am not aware of any evidence that dietary flavonoids can be directly toxic, even in meal plants that contain an abundance of fresh vegetables and fruits as well as an abundance of nuts, seeds, beans, legumes, and whole grains. When consumption of the foods above is very high, the total fiber content of the diet usually goes up dramatically. I would expect high flavonoid intake from whole natural foods to accompany diets high in dietary fiber, and just do not see toxicity risks being associated with this type of dietary intake. In addition, Flavonoids are water-soluble.


Vitamin C Toxicity

The upper limit for vitamin C intake is 2000 mg/day. Up to 10 g/day of vitamin C are sometimes taken for unproven health benefits, such as preventing or shortening the duration of viral infections or slowing or reversing the progression of cancer or atherosclerosis. Such doses may acidify the urine, cause nausea and diarrhea, interfere with the healthy antioxidant-prooxidant balance in the body, and, in patients with thalassemia or hemochromatosis, promote iron overload. Intake below the upper limit does not have toxic effects in healthy adults.

Hypermobile Type of EDS

hypermobility.jpg.w300h216Hypermobility Ehlers-Danlos Syndrome is the most common type of EDS. It was formerly called Type III. Hypermobility Type (also knows as Joint Hypermobility Syndrome) is distinguished from the Classical Type chiefly by milder and fewer skin and soft tissue manifestations. The diagnosis of EDS, Hypermobility Type is based ENTIRELY on clinical evaluation and family history. This mutated gene is currently unknown and therefore cannot be tested.

Just like other EDS symptoms, they include joint hyper-mobility (double-jointed) or dislocations (popping out of place), muscle pain, and easy bruising. All Types of EDS may also include Digestive issues, Spine issues, or Vascular EDS issues and need to be aware and checked on a regular basis.

A friend told me to look into this and I’m grateful to learn more and be aware of why not only me, but my children are fragile. Please tell someone about EDS because they may not have the answers. They may need you. 1 in 5,000 are diagnosed with EDS, but because of the number of people that are misdiagnosed or go undiagnosed, it is estimated that it is 1 in 2,500 people. I am definitely not the only one…

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CLICK HERE TO READ ABOUT Lorraine McCarthy who was a model, but had to leave because of her connective tissue issues. She has Hypermobility Type of Ehlers-Danlos Syndrome.


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CLICK HERE TO READ ABOUT how Jodie Vasquez had to be fed through a tube at 19yrs because of her connective tissue issues.


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CLICK HERE TO WATCH A VIDEO about how Rei Haycraft, the lead singer for the hard rock band Raimee, lives with EDS and made a video about it.


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CLICK HERE TO READ ABOUT Emily Comber. She discusses her life with Hypermobility EDS and how it affects her family.


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CLICK HERE to watch an interview with Cherylee Houston, a British actress on the soap opera Coronation Street.


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CLICK HERE to learn about Dr. Heidi Collins who is a specialist helping those with Ehlers-Danlos Syndrome. She and her daughter both have Hypermobile Type EDS.


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Other Related Posts

Ehlers-Danlos Syndrome

Types of EDS

Classical EDS-(my Story)

Vascular EDS

Rare Types of EDS

Different Types of Ehlers-Danlos Syndromes

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Ehlers-Danlos syndrome (EDS) is a collection of inherited conditions that fit into a larger group, known as heritable disorders of connective tissue.

Connective tissues provide support in skin, tendons, ligaments, blood vessels, internal organs and bones. Listed are the major types of EDS, though, rarer types have been discovered. (They used to be classified by numbers: Type I, Type II, etc. Since 1988, they are referred more now to their name.)

 



The Hypermobility Type of EDS is characterized by loose joints and chronic joint pain.


Vascular Type

The Vascular Type of EDS is characterized by possible arterial or organ rupture as a result of spontaneous rupture of vessels or organs due to the result of even minor trauma.  The Vascular Type of EDS is the most serious form of Ehlers-Danlos Syndrome.

People with vascular EDS may have: skin that bruises very easily because of fragile tissues, thin skin with visible small blood vessels, particularly on the upper chest and legs, fragile blood vessels – this can lead to major complications, such as blood vessels tearing (dissection) and arterial aneurysms (artery widening with a risk of rupture), risk of damage to hollow organs, such as bowel perforation or uterine rupture (where the womb tears),Occasionally there may be other features including: hypermobility of small joints (such as fingers and toes), premature ageing of the skin on hands and feet, unusual facial features, such as a thin nose and lips, large eyes, small earlobes and fine hair, joint contractures (permanent shortening of a joint), partial collapse of the lung (pneumothorax), gum problems, such as bleeding or receding gums, varicose veins in early adult life, wounds may take longer to heal


 

Kyphoscoliosis Type


The Kyphoscoliosis Type of EDS is characterized by generalized joint laxity and severe muscle hypotonia (weak muscle tone) at birth. 

People with kyphoscoliotic EDS may have: curvature of the spine (scoliosis) – this starts in early childhood and often gets worse in the teenage years, loose, unstable joints that frequently lead to dislocations, weak muscle tone from childhood – this may cause a delay in sitting and walking, or difficulty walking if symptoms progress, fragile eyeballs that can easily be damaged, unusual shape or size of the clear front part of the eye (cornea), soft, velvety skin that is stretchy, bruises easily and scars


 

Arthrochalasia Type


 

Dermatosparaxis Type

The Dermatosparaxis Type of EDS is characterized by severe skin fragility and substantial bruising. Wound healing is not impaired and the scars are not atrophic. The skin texture is soft and doughy. Sagging, redundant skin is evident. The redundancy of facial skin results in an appearance resembling cutis laxa. Large hernias(umbilical, inguinal) may also be seen. The number of patients reported with this type of EDS is small.


Tenascin-X Deficient Type


It’s also important to understand that even if you have a certain type of EDS, it does not mean that you do not have Vascular problems. One can even have a mutated gene from one parent combined with another mutated gene from another parent and have both types. There is a 50% chance of even passing the mutated gene on.
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