Tag Archive | Freedom

Happy Birthday to me!!!! 

I am so excited to be alive!!! If everyone could understand what it feels like to feel dead, lifeless, immovable, unable, incapable… and then to be given life back!!! You would be so grateful for EVERYTHING that you are able to do, see, and be a part of! 




The last 12 years were spent in sickness. It felt like I was dying over and over again. I’d gain my freedom, and something else would happen. 4 times stuck in a bed. 4 times fighting through issues. Trying to find out who I was when I couldn’t accomplish ANYTHING. Trying to find out what was wrong with me. Trying to figure out how to heal, so that my children wouldn’t have to go through what I have.  




I learned to let people love me. It is not a weakness to ask for help. I learned that even though I couldn’t do it, God sent someone to help me; to love me. No, they weren’t perfect. But, neither am I. 




I learned to love my husband, my caregiver, my friend (not my enemy.) The little spats didn’t matter. The messy house didn’t matter. Priorities went back where they belonged. 




I learned to love my children instead of putting unrealistic expectations on them. I learned that we are all different and that it’s okay. Miscommunication can be worked through. Boundaries can be set. 




I have learned to love myself. Those mistakes that I was so hard on myself for were learning steps. Thomas Edison tried 1,000 times before he successfully invented the light bulb. I have no idea how many times I tried before I could walk successfully the first time. We only fail when we give up. I don’t have to be perfect, but I can keep trying to be better one attempt at a time. 


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I learned that I didn’t need to have everything that I wanted in order to have joy. I learned to be thankful for the hardships, not a victim full of fear. There is something good in every day. There is something that I can learn in the pain. 




God can use this for my good and the good of others. I have learned that I can still help others even lying in a bed. I can text encouragement, pray for others, and share what I have learned and overcome thus far even though I still have further to go. 




I learned that God can work miracles even when we can’t see how. I learned to listen closely to His Spirit and to follow directions. I had never walked so close to God before. 




I found the answers to heal on this journey, and I no longer have to worry about my children’s future. God wants me to use this information to help more than just my family, and I am excited to be living again!!!




Happy Birthday to me!
I’m Free to be the person God created me to be!!!



Jumping for Joy in January!!!

Christmas Day, I received the final answer to my health puzzle. I said that HEALING, to me, means that I do not need meds and if I WANTED to, I COULD pursue any work I desired without worry about whether I could handle it.



January Changes: 

Wk1-Celery Juice and lemon water
Wk2-beet/strawberry smoothie replacing cereal and magnet rings to sleep with
Wk3-blueberry/spinach smoothie adding to my meals and a commitment to stay away from cheese and wheat to heal. 
Wk4-evaluating meds and supplements, lowered protein by half, and tried a couple of new recipes…  
You do NOT have to sacrifice taste to feel or get well!!!



I had 4 medications… 

-I no longer need my asthma med.
-I do not need the extra herbs to sleep on top of meds and I’m actually sleeping!
-I’ve cut one anxiety med from a full pill daily down to a quarter (I just wanted to make sure that I didn’t need it. I won’t need it this week.)
-My steroid that keeps me standing has been cut in half and the doctor gave me the okay to get off of it, if I feel comfortable. It’s going this week.
-That leaves one anxiety medication.


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This weekend, I went out with a friend for a few hours. The next day, went to a Women’s Conference for two half days and a night where I danced and stood to sing a few songs. Tomorrow, I’m driving to see my family at their church over an hour away. I’m not worried one bit. A little tired, but who wouldn’t be. I am healing!!!




My stomach feels cleaner, my ab muscles feel stronger, and I can think clearer.




Which opens up another calling for my future… a Health Coach. I have a few future callings (Promises) that God has been lining up for me while I’ve been seeking His answers for my healing.




But first, I want to get well, and stay there, and help my family, as well. This is going to be a GREAT Healing year for me!!




Just because you’ve been told that there is no cure, and that you’ll just have to learn to cope, does NOT make it so. There is an answer for every problem, and God answers prayers!!!


Feel Your Emotions



November, over year ago, I first experienced Fibromyalgia. I had a confrontation with someone at Bible Study and I didn’t feel like I had a voice in the situation. I was angry and became depressed. Within the week, I had insomnia and pain up my spine and over my shoulders so bad that no one could touch me. It was not only hard to experience those physical pains, but one of my main Love Languages is touch which left me feeling lonely.




I worked with a friend of mine to find the best essential oils for me to help heal the inflammation. Within a month, I was able to get the pain gone.




Doing the Dressing Your Truth program began to teach me that I am lovable and created beautiful in my own type. I began to be excited to be me and tell others what I had learned.




In the process, I had friends that were angry with me for doing so. I began to notice a pattern in these confrontations and I would feel the pain severely again. Some of it was that I would turn to my sugar addiction and my body is already out of balance with bad bacteria causing Leaky Gut. Part of it is that I would revert right back to “Somebody doesn’t like me, I’m not good enough” thinking. I realized after the last time, that I’d had enough of taking my anger out on me.




I began to go to counseling to learn to deal with my anger in a healthy way. And here I’ve been learning to set boundaries in my relationships, to be more patient with myself, and to use my voice.




One of the things that my counselor has been reiterating is that emotions don’t last very long. If we don’t allow ourselves to feel our emotions, it turns into suffering.




I used to stop myself from crying because it wasn’t a “positive” emotion. I felt that it was incorrect to be angry or to cry. I would still be angry, I just wouldn’t express it. Pretending that the feeling wasn’t there didn’t make it go away. My anger would then last for a few days, then I would get depressed for a few days thinking that it was my fault that I was feeling angry and that it was wrong to feel that way. Then I would find a way to move on.




But this weekend, my husband and I went out to eat at a buffet. Going out to eat is hard for me because so many things can knock me back down again. I got a lot of meat and found a few veggies that were not covered in sauces. My husband sat down with carbs. I looked at his plate and said, “I miss that.” He said that a little bit would probably not hurt me, but in this healing stage, I need to stay away from it. I also know that I wouldn’t stop with a little bit because I fear I may never have it again and go overboard.




And I began to cry. This time, I didn’t stop it. I cried because of grief over the loss of my favorite foods. I cried because it wasn’t fair. I cried because I caused this damage to my body. I cried because I don’t know how long it will take to heal.




And after a couple minutes of crying over my food, it was over. I took a deep breath and felt great! I didn’t mourn for the rest of the day. I did not mope about it for the next week. I wasn’t angry with myself, depressed about it, nor did I feel the Fibromyalgia pain. I’m so excited that I’m learning!!! I’m getting it!!! It’s one thing to know what is wrong with you, or have the answer of how to get better, but accomplishing that task is so rewarding!!




I know that without my vitamins and supplements right now, I could still and have crashed. I know that diet changes and exercise are crucial and I don’t have it down, yet! I know that I need to be especially careful around hormone changes. I know that what works for me, may not work for everyone, but it doesn’t mean there aren’t answers for you. I know that addressing whatever caused the initial problem may not be the only way to heal. Because all parts of the body work together, one thing can affect all the other. By praying, hoping, being willing to seek and find answers, and paying attention to my body, I have been able to see the connection for me. I am excited that I am practicing feeling my emotions, learning how to voice them, understanding that it is okay to do so, and that I’m getting this part!!! I am healing!


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The last month or so, I’ve been going through a sort of grieving process. I’ve been mourning my past self… the healthy one. With Ehlers-Danlos Syndrome, we need to stay on top of our diet, exercise (not too rough), and stress levels. (who doesn’t right?) Being a homeschool mom of 4, most of which also have EDS and the problems that go with it, I have been neglecting myself in the midst of handling so many emergencies. Now, I’m in “recovery.”

I mourn being able to cut fruits and veggies without pain. I mourn being able to go at a continual process of motion from one thing on my list to the next. When I feel sick, I need to stop. I mourn being able to eat at social food functions. I mourn being able to leave the house whenever I darn well feel like it. I never know when my legs will give out. I mourn the freedom from braces on my hands and knees, or even a cane. I mourn having independence and self-sufficiency some days.

My kids found me crying in my bedroom recently and asked me what was wrong. I said, “I just want to be normal! I want to wash dishes or do laundry like normal people do!” My oldest son, whose joints pop out randomly, snickered and replied, “But Mom, we’re not normal.” My oldest daughter who has had stitches three times this year because her skin tears easy just hugged me and said, “I know, Mom.”

I went to lunch with a friend of mine this week whose in recovery of cancer for the second time, as well as, experiencing the pain of her parents health declining. We cried, hugged, and poured our hearts out and encouraged each other. We laughed about what we’d prayed about prior to our health declining. She wanted to be closer to God and to have time to visit her parents. I wanted to learn more about how to heal the symptoms of Ehlers-Danlos Syndrome naturally to be prepared with answers for my kids’ future. And here we are.

She shared with me a story…

“A boy found a cocoon of a butterfly that he brought home.  One day, a small opening appeared in the cocoon. He sat and watched the cocoon for several hours as the butterfly struggled to force its body through that little hole. Then it seemed to stop making progress. It appeared as if the butterfly had gotten as far as it could, and it could go no further. The boy decided to help the butterfly in its struggle. He took a pair of scissors and snipped off the remaining bit of the cocoon…  and the butterfly emerged easily.

As the butterfly emerged, the boy was surprised. It had a swollen body and small, shriveled wings. He continued to watch the butterfly expecting that, at any moment, the wings would dry out, enlarge, and expand to support the swollen body. He knew that in time the body would contract and the butterfly would be able to fly.

But neither happened. In fact, the butterfly spent the rest of its life crawling around with a swollen body and shriveled wings. It was never able to fly.

What the boy in his kindness and haste did not understand was that the restricting cocoon and the struggle were required for the butterfly to be able to fly. The butterfly must push its way through the tiny opening to force the fluid from its body and wings. Only by struggling through the opening, can the butterfly’s wings be ready for flight after emerging from the cocoon.

Sometimes struggles are exactly what we need in our life. If God allowed us to go through our life without any obstacles, it would cripple us. We would not be as strong as what we could have been.

And we could never fly.”


So, this week, I’ve been learning to forgive myself for grieving. I’d been going off of not only my expectations, but feeling others’ expectations that I will heal fast and just feel better like a virus. I decided to let go of my control. It’s not mine.

“Today, I forgive my braces for not matching my clothes. I’m thankful they are holding my joints together so I can function. I forgive my fingers, wrists, back, elbows, and knees for hurting and not being able to do what they used to do. I’m thankful that there is hope I can get stronger through slow exercises, essential oils, diet changes, and who knows what other answers are out there for me. I forgive myself for not having all the answers or the strength to follow through when I have an answer. I forgive myself for not being strong. I forgive myself for not being able to change my eating habits overnight or even for being too tired to make the “right” meal. I forgive my body when it’s too tired or sick to keep going. I honor my body with rest, comfortable clothes even if it’s my pajamas, and I will focus on enjoying my time with the kids. I forgive myself for getting frustrated. I’m thankful for supportive family and friends who “get it.” I forgive my body for not being able to function on a level that it used to. I am still worth something regardless of my accomplishments. I am still angry about it and I may cry a lot in processing it, but I forgive the anger. It’s okay to feel this way.”

This week, being Christmas, I decided to make a change in my life. I’m tired of being in my pajamas. They are so soft, but I feel sick being in them all day. I cleared out everything in my closets that was not soft in texture or color. Yes, I got rid of my black clothes. I’m naturally a soft person and I want that person to be seen… not the sick one… not the person hiding hoping not to be seen unhealthy… I want people to see me BEYOND my disorder. I want to FEEL like me beyond my disorder.

I also asked for help from my hubby in making a big salad for the week and did my best to stay away from the things that make me feel so sick. I feel like a completely different person! I don’t feel like I’m well overnight, but I’m feeling more like me. My clothes aren’t me, but I feel better in my clothes. My disorder isn’t me, but I feel like I’m dealing a lot better than I was. We are free to struggle because it makes us stronger and wiser people in the long-run.

For more articles like this one check out Faith and Encouragement