Leaky Gut


As people began to talk about their multiple issues during a support group meeting for Ehlers-Danlos Syndrome, I noticed that they all had digestive issues in common. Many talked about something called, “Leaky Gut,” “Candida,” “probiotics,” and how wheat was a big trigger. I had multiple allergies and intolerances and there was no way I was going to stay away from another food.

My son had been in to see a specialist and she told me that we should all get off of wheat because of how harsh it is for EDSers and that it may be contributing to malabsorption of vitamins in our food: specifically Magnesium. She also suggested that my youngest son, who was chewing on a paper airplane in her office, would benefit greatly from this, as well. I made a decision to cut down on bread in the house and add in some supplements. (Although, I felt I had no idea what I was doing.)

By the end of the year, I began experiencing Chronic Fatigue, Fibromyalgia, Insomnia, and my other issues had grown worse: Anxiety, Depression, Andenomyosis, Chronic Pain, and now a wheat intolerance. I was already looking into Hyperactivity, Learning, and Behavior Issues for my boys and ran across a natural solution for those things.



I talked to my primary doctor throughout all of my issues. I asked him about “Leaky Gut.” He said that he wasn’t sure, but it “could be.” He suggested I go to a gastroenterologist for my new issue with wheat.

Gastroenterologist Donald Kirby, MD, director of the Center for Human Nutrition at the Cleveland Clinic says, “Physicians don’t know enough about the gut, which is our biggest immune system organ. ‘Leaky gut syndrome’ isn’t a diagnosis taught in medical school. Instead, ‘leaky gut’ really means you’ve got a diagnosis that still needs to be made,” Kirby says. “You hope that your doctor is a good-enough Sherlock Holmes, but sometimes it is very hard to make a diagnosis.”

Not all doctors make the effort to get at the root of the problem, and that’s what frequently sends patients to alternative practitioners. So…  what if Leaky Gut WERE the root of the problem causing all of these other problems?

My EDS specialist said that most EDSers have an issue with Leaky Gut because we are so sensitive. She also reiterated that eating wheat for us, is like taking a brillo pad to our stomachs. She gave me a list to work on.



I researched probiotics and was so confused with all the different kinds. Some said the best was in the way it is stored. Some said that it was the kind or how many strains were in it. Some said it had to do with how much you took at a time. I loved the information that came across in webinar for Perfect Biotics. I’m not a purchaser of their product, but the information was wonderful!


probioticClick on the Picture for the Video Information to begin.


So here, I had been struggling with these concepts and what was best for my family and I. And I ran across Dr. Axe. He said to “think of the lining of your digestive tract like a net with extremely small holes in it that only allow specific substances to pass through. Your gut lining works as a barrier keeping out bigger particles that can damage your system.

“When someone has leaky gut (often referred to as increased intestinal permeability), the ‘net’ in your digestive tract gets damaged, which causes even bigger holes to develop in your net, so things that normally can’t pass through, are now be able to.

“Some of the things that can now pass through include proteins like gluten, bad bacteria and undigested foods particles. Toxic waste can also leak from the inside of your intestinal wall into your bloodstream causing an immune reaction.”





Dr. Axe talks about the many different symptoms caused by Leaky Gut: Bloating, Food sensitivities, Thyroid conditions, Fatigue, Joint pain, Headaches, Skin issues like Rosacea, Excema, and Acne, Digestive problems, Weight gain, Syndrome X, and more…




I like Dr. Axe’s program because #1 not everyone is the same and it’s catered to you, #2 I don’t have to guess how to put it all together, #3 It’s the same thing that my specialist was talking about in changing diet and adding supplements, but exactly how. Feel free to let me know your experiences with Leaky Gut, Healing Leaky Gut, or the different programs to do so.


References from Dr.Axe: http://draxe.com/4-steps-to-heal-leaky-gut-and-autoimmune-disease/



 Other Related Articles Include:

Antibiotics Kill

Digestive Health and Healing



4 thoughts on “Leaky Gut

  1. Hello there!
    Thank you so much for writing this. It is suspected that I have EDS so I’m currently waiting to get in to see a geneticist. I stumbled onto your post because, I too was wondering whether or not there could be a correlation between EDS and Leaky Guts Syndrome. I’m so glad that I’m not the only one to think so! The amount of Leaky Gut symptoms EDSers seem to have is undeniable.
    I was wondering if you were still following the Leaky Gut Healing protocol? If so, how has it worked for you?
    Sending lots of spoons,
    -Alana 💕

    Liked by 1 person

    • Thanks for your insight, Alana. I think we’re on the same mission to feel well and fix whatever causes we can to do so. That is not always the case and it’s nice to meet a fellow Spoony! While I do NOT believe that Leaky Gut caused Ehlers-Danlos Syndrome as it is a mutation or missing information, Leaky Gut HAS been the cause of many problems under the umbrella of EDS: vitamin deficiencies, chronic pain, hyperactivity, insomnia, and major dysautonomic functions. Right now, I am at about half where I want to be with following protocol especially during the holidays and a major move this year. I usually tend to jump in, get overwhelmed, back off, and create a slower plan and begin again.

      Because of EDS, we need more Magnesium in our diet, so that is my main focus. If I didn’t include especially Magnesium vitamins and foods, I would be right back to where I was 2 years ago unable to get off the couch. Healing the stomach is much harder than maintaining, but I’m still working on what works best for my children and I. 2 of my children are doing amazing since just diet changes and yogurt/keifer adding to their diet. I have not done bone broth, yet. One of my children has gone through so many antibiotics for the first few years of his life, he’s still struggling with me. Although, I have over-done it with gardening my new place and ended up a week in recovery (at home Magnesium foods and supplements while on the couch dizzy and sick to my stomach) life is actually exciting again! I realize how many people take for granted walking across a room without passing out or needing assistance, being able to do multiple jobs (homeschooling, cleaning the house, cooking, going up and down stairs etc.) I feel like I have found life again vs. fear. I just have to remember to balance.

      I DO believe that Leaky Gut is a major factor in my not being able to hold Magnesium in my body. It was NOT this hard to keep up on taking care of myself even 3 years ago, even though, I was sensitive in main EDS areas (mine being skin with Classical Type.) I know something in my body switched and I believe that it is Leaky Gut as my specialist also guided me in the same protocols as Leaky Gut. I am not rigid however anymore in doing so. In the beginning, I was not able to handle any sugar or going out to eat, any variance in diet, etc. Now, I allow myself one thing of something fun every week (going out to eat, pizza, mac and cheese, or cookies as long as it doesn’t stay in the house) and stay limited at social parties where that type of food is dominant. After the holidays, I will become rigid again for January and see how we’re all faring then. I think, though, if we do an all-or-nothing type of anything (diet, budget, exercise) for too long, that we will always fail.

      I hope that helps. If you have any more questions or want to add things that you’ve learned in your journey, feel free. Thanks again!


  2. Thank you so much for writing this_ I have chronic fatigue syndrome and am only now making the connection with my hypermobility and my gut issues SIBO and leaky gut- makes so much sense! Think my son has the same issues which is devastating to me but if we can heal the gut then lots of the negatives of this condition can be reduced – thanks again!


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